Organization for Autism Research

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Resources

Life Journey through Autism Series

 

OAR has published eight Life Journey guidebooks and The Best of The OARacle to date.  You can read their descriptions, preview each online, or download copies at no cost below. 

If you are interested in receiving a hard copy of any of OAR's guidebooks, please note that OAR's inventory is limited and restrict your order only to the resources necessary to you. OAR will consider providing up to 2 copies of each resource free of charge.


For large orders, contact us at programs(at)researchautism(dot)org.


Click here for information about pricing and shipping fees.

OAR's publications to date include:

See OAR's Reproduction Policy below.

 

A Guide to Safety

No parental instinct is as intense and fundamental as protecting one’s child from harm. For parents of children with autism, safety risks become magnified because of challenges resulting from fixations with narrow interests, limited situational awareness, and sensory and communication issues. So why should parents expect to do it all alone?

A Guide to Safety was written by parents, first responders, educators, and community members who share their strategies and resources to address safety threats that commonly arise during childhood, adolescence, and adulthood. This tool will educate parents about how to prevent and mitigate emergency events, safety threats that may affect their child in the future, and how to teach safety habits that will build a foundation for safety in adulthood.

A Guide to Safety covers a range of topics, including:

  • Safety network development
  • Prevention and management of wandering and elopement behaviors
  • Relationship, physical, and sexual safety discussions
  • Strategies to address bullying and online threats
  • Tips on money and workplace safety

It also includes sample identification documents, advice from an adult self-advocate, evidence-based safety skills lesson plans, and more.

The guide can be used independently or as a supplement to a pre-existing safety plan. It is also an excellent tool for developing first responder training programs.

If you are interested in obtaining a hard copy of the Guide, please visit OAR's shopping cart. To download the guide, click the cover below.   

 

 Download A Guide to Safety (3.9 MB) by completing the PDF download request form.   

 

 

 

 

 

 

A Parent’s Guide to Research

Understanding a complex spectrum disorder like autism is difficult enough in a purely academic setting. Yet when parents learn of their child’s autism diagnosis, they are tasked with educating themselves about autism and the wide range of treatment options available.

Research can play a critical role in that education. That is why OAR created A Parent’s Guide to Research, a basic primer on autism research. The guide includes:

  • A glossary of terms
  • An overview of scientific research
  • How to determine if a particular study may or may not be pertinent to a particular child
  • Questions to ask about evaluating research studies

If you are interested in obtaining a copy of the Guide, please visit OAR's shopping cart. To download the guide, click the cover below.

Cover of Parents GuideDownload A Parent's Guide to Research (1.8 MB)
To download right click on the above link and choose "Save Target As" to save the guide to your PC. You will need the Adobe Acrobat Reader to view the Guide.

To view this guide in Spanish, click here.

 

 

 

An Educator’s Guide to Autism

An Educator’s Guide to Autism, the second book in the Life Journey through Autism series of resource guides published by the Organization for Autism Research provides parents, teachers and education professionals with a plan for teaching a child with autism in the general elementary classroom setting.

The heart of An Educator’s Guide to Autism is a six-step approach for a teacher preparing to teach a child with autism in his or her classroom. The steps include the following: (1) educate yourself (2) reach out to parents (3) prepare the classroom (4) educate peers and set social goals (5) collaborate on the implementation of an educational program and (6) manage behavioral challenges. The discussion of each step includes practical tips on what a teacher should look for and how to navigate the challenges that may arise. Following these steps offers the teacher the potential to create the most favorable educational environment for all learners in the classroom, including the student with autism.

If you are interested in obtaining a copy of the Guide, please visit OAR's shopping cart. To download the guide, click the cover below.

Download An Educator’s Guide to Autism
To download right click on the above link and choose "Save Target As" to save the guide to your PC. You will need the Adobe Acrobat Reader to view the Guide.

To view this guide in Spanish, click here.

 

 

 

An Educator’s Guide to Asperger Syndrome

An Educator’s Guide to Asperger Syndrome is the third book in the Life Journey Through Autism resource guide series.  Asperger Syndrome is a complex disorder that presents numerous challenges within the inclusive classroom setting.   This book provides guidelines for meeting the needs of the student with Asperger Syndrome in your class, from elementary to high school.  Specifically, the Guidebook contains information on

  • Understanding the common characteristics of Asperger Syndrome and how they affect each child on a case by case basis
  • Promoting positive social goals and educating peers to avoid bullying
  • Cooperating with the parents and student’s IEP team
  • Implementing strategies to better facilitate learning in the student with Asperger Syndrome.

If you are interested in obtaining a copy of the Guide, please visit OAR's shopping cart. To download the guide, click the cover below.

Cover of Educator's Gudie to Asperger
Download An Educator’s Guide to Asperger Syndrome

To download right click on the above link and choose "Save Target As" to save the guide to your PC. You will need the Adobe Acrobat Reader to view the Guide.

To view this guide in Spanish, click here.

 

 

 

A Guide for Transition to Adulthood

Adulthood is more than just a chronological state. Adulthood represents a time in one's life where there are increased levels of independence, choice, responsibility, and personal control. Adulthood is the defining period of one's life and, while we may look back fondly on our childhood, it is our accomplishments as adults for which we are generally most proud. Why, then, should adulthood for the person with an autism spectrum disorder be viewed any differently? In this, the fourth volume in the OAR Life Journey Through Autism series, we provide an overview of the Transition-to-Adulthood process, with an emphasis on:  

  • The importance of early planning beginning no later than age 16 years and at times, as early as 14 years or younger
  • Collaboration between the transitioning individual, their family and friends, interested community members, the schools' professional staff, and representatives from adult service systems in the transition to adulthood process
  • The significance of community-based instruction in the development of skills associated with a more independent adulthood
  • The reality that individualized, effective transition planning is effortful and time consuming but when done well, can result in a fulfilling life as an adult

If you are interested in obtaining a copy of the Guide, please visit OAR's shopping cart. To download the guide, click the cover below.

Cover of Transition Guide
Download A Guide for Transition to Adulthood

To download right click on the above link and choose "Save Target As" to save the guide to your PC. You will need the Adobe Acrobat Reader to view the Guide.

To view this guide in Spanish, click here.

 

 

 

Understanding Autism: An Employer's Guide

In addition, OAR collaborated with the District of Columbia Public Schools to produce a short resource entitled Understanding Autism: An Employer’s Guide to help front line supervisors support their employees with autism.

If you are interested in obtaining a copy of the Guide, please visit OAR's shopping cart. Click here to download the guide.

 

 

 

A Parent's Guide to Assessment

The formal assessment process can be a daunting experience for parents of children newly diagnosed with autism. By using highly technical language and focusing on “deficit performance,” assessments can often overwhelm and dishearten parents. In addition, outcomes are rarely explained in terms that parents can use to set goals for their children. This new Parent’s Guide to Assessment will serve to provide the tools to better understand the assessment process and, subsequently, utilize assessment outcomes to improve services and interventions for their children.

Among the topics covered in the Assessment guide will be:

  • The strengths and weaknesses of the assessment process
  • The technical language contained in the reports
  • Who is qualified to complete an assessment
  • What specific assessment tools measure
  • How to interpret the results in a way that informs proactive, individual decision making

If you are interested in obtaining a copy of the Guide, please visit OAR's shopping cart. To download the guide, click the cover below.

Assessment Guide
Download A Parent's Guide to Assessment

To download right click on the above link and choose "Save Target As" to save the guide to your PC. You will need the Adobe Acrobat Reader to view the Guide.

 

 

 

 

A Guide for Military Families

Military sources indicate that more than 13,000 military dependents, the majority of them children, have some form of autism. Their families face all the emotions and challenges that accompany having a child diagnosed with autism, compounded by the realities of military service: war, extended family separation, frequent moves, varying access to specialized healthcare, and other stressors that complicate and often work against effective treatment for children with autism. These families need help navigating these uncharted and difficult waters.

This Guide and its companion Web site (www.operationautismonline.org) are designed for these families. The purpose of these resources is to give each family the tools and access to information that it needs on its unique life journey through autism. More specifically, the goals of this Guide are to provide:

  • An understanding of autism and related intervention and treatment
  • Strategies for addressing the challenges of autism from the time of diagnosis
    through adulthood
  • An overview of the Department of Defense (DoD) and service policies related
    to having a child with autism
  • Information on autism treatment options and coverage within the military
    healthcare system
  • Practical information and tools to guide your child’s education
  • Tips and advice relative to transitions such as permanent change of station (PCS) moves, new schools and more
  • Links to additional resources relative to autism and military families

If you are interested in obtaining a copy of the Guide, please visit OAR's shopping cart. To download the guide, click the cover below.



Download A Guide for Military Families
(2.7 MB)

To download right click on the above link and choose "Save Target As" to save the guide to your PC. You will need the Adobe Acrobat Reader to view the Guide.

 

 

 

 

Navigating the Special Education System

As the number of children being diagnosed on the spectrum continues to increase, more children with autism are attending public school than ever before. Many teachers, administrators, and school support staff lack the background and training to meet the unique needs of students with autism. It falls to the parents to make sure that their child’s challenges, whether with social interactions, communication, or behavior, are addressed with research-based interventions within the school setting. To assure this, parents must have a basic understanding of special education services, their child’s rights, and their own.

This Guide is designed as a resource for parents. Its purpose is to give each family the information and tools needed to successfully navigate the education system anywhere in the country. More specifically, it offers:

  • Background on special education in the United States
  • An understanding of the laws and regulations about special education
  • An overview of the timeline of services
  • A detailed explanation of Individualized Education Programs (IEPs)
  • Tips and techniques for being an effective advocate
  • Sources and links that will help you identify specific state resources and find more in-depth information
  • Lists and definitions of terms that are frequently used in school systems

If you are interested in obtaining a copy of the Guide, please visit OAR's shopping cart. To download the guide, click the cover below.


Download Navigating the Special Education System

To download right click on the above link and choose "Save Target As" to save the guide to your PC. You will need the Adobe Acrobat Reader to view the Guide.

 

 

 

 

The Best of the OARacle

Selected Articles from 2002-2007

This publication includes the best of The OARacle’s research articles, all collected in one volume and categorized for easy reference.

The Best of the OARacle cover

 

Download The Best of the OARacle

To download right click on the above link and choose "Save Target As" to save the guide to your PC. You will need the Adobe Acrobat Reader to view the Guide.

 

 

 

Reproduction Policy:

These guidebooks are available for use by all those whose lives are affected by autism. In keeping with OAR's mission, the information included in these books may be utilized for personal use, teaching, research, for IEP meetings or any other capacity in order to facilitate the dissemination of information. You may reproduce (print, make photocopies, or download) these materials without prior permission for non-commercial purposes. If used professionally, OAR asks that the you provide proper attribution of the source in all copies.

For other uses of materials, please contact OAR at info@researchautism.org.